Finding the Right Kind of Care for your Family Member

Families each day families face the question, my loved one is ill and/or I can no longer take care of him/her so what are my options?

Before, anyone gets started they must first evaluate the situation thoroughly.  One must answer the following crucial questions before proceeding:

  1. What type of illness is affecting the elder? Is temporary or permanent?
  2. Can the person be left alone for any length of time? And if so, how many hours per day does the elder need extra help if they remain in the home?
  3. Has the person’s mental or physical capacity declined to the point where that they now need 24 hour supervision but still need minimal assistance with their activities for daily living (ADLS)? Or have they declined to the point where they need 24 hour nursing care?
  4. What type of assistive devices (canes, walker, wheelchair ) do they use daily? (This often helps determine where the placement of the individual).
  5. What finances are available?

Although many people today plan for their retirement they do not plan for the unexpected illness. So when this happens often times the entire family has a dilemma of how to pay for the type of care your loved one may need. In some cases, the option of long-term care insurance is available and can help. But, long-term care insurance will only pay when the circumstance meets certain criteria. Also, it pays secondary to the person’s primary insurance.

Because of the high cost of medical care outside the home, many times families will opt to take care of their love one at home. Unfortunately, many families find that their elderly parent or other loved one requires much more care than they can provide. So the family and the patient are left wondering what to do next.

Everyone has the right to have a better understanding of the elder care system and the potential costs involved. It is important for everyone involved in the lives of our cherished elderly population and other ill patients to have as much information as possible so that a calculated and overall better made decision transpires.

There are several options available to families these days. Two of the important factors which influence the decision on where to place your loved one are the financial ramifications and the other is the type of care needed.

With the high cost of medical care these days many families opt for taking care of their loved one at home. There are still options available to help make this easier both physically and financially.

The family can hire an outside agency to help care for their loved one, but  often have a  high cost. Services charge an hourly rate usually ranging from about $18 to $25 per hour. If over-night care is necessary then the cost goes up. Many cannot afford this service. Yet, there are advantages to this of type of care as some  agencies are hired for a short amount of time. For example, if the elder just needs assistance with shopping or the lunch meal then the agency can provide a caregiver for 2 hrs per day to assist them. This would be far less expensive than placing the individual in an Assisted Living or Board and Care.

Another way is for families to apply for in-home support services if they meet the criteria. The IHSS Program is available in California (other states may also have similar services available, please check with your Medicaid program).The IHSS Program will help pay for services that will help the elderly person to remain safely in their own home. This is an alternative program to long-term care (nursing homes), assisted living or board and care facilities. Eligibility requires the person to over 65 years of age, or disabled, or blind. Disabled children are also eligible for IHSS. Also listed below are other eligibility requirements:

  • Is the person a currently receiving Supplemental Security Income/State Supplementary Payment (SSI/SSP); or
  • Does the person meet all the eligibility criteria for SSI/SSP except that their income is more than that of the SSI/SSP income levels; or
  • Does the person meet all the eligibility criteria for SSI/SSP, including the income requirement, but still is not receiving SSI/SSP; or
  • Is the person a Medi-Cal recipient who meets SSI/SSP disability criteria?

Some of the approved  IHSS services are housecleaning, meal preparation, laundry, grocery shopping, personal care services (such as bathing, grooming and toileting), assistance with wound dressing changes, stoma care, companionship to medical appointments, and protective supervision for the mentally impaired.  For other services provided check with the program directly.  Family members can provide these services in lieu of an outside agency provide the services.

The problem with this model is that most elderly patients need more than just a few hours of care. The IHSS program will approve up to 4 hours of paid assistance depending on what they determine the need is. In that case the burden falls upon the family to care for the person for the remaining 20-22 hours hrs per day.

If the family finds that caring for the elder in the home is too difficult they can opt for other residential care options such as a Board and Care or Assisted Living Facilities. The term residential care refers to a facility where non-medical long-term care is provided in a single family residence, a retirement residence or in any appropriate care facility.

A Board and Care facility is usually a 1-6 bed facility and has a home like environment being set in actual residential homes. The potential resident must be able to take their own medications with minimal assistance, they should be ambulatory but can use assistive devices such as a walker, should be able to feed themselves with minimal assistance. This type of facility is completely private pay. Meaning the family or resident will have to pay out of their pocket. Some do accept SSI/SSP as payment, but they are difficult to find and the patient has need very little assistance. The cost per month for this type of facility can range from $1500 on the low-end to $ 4500. The cost will depend on the “level of care.” This means, for example, that for the basic room and board there is one price, but if the resident needs more assistance such as with bathing and grooming and/or with taking medications there will be an increase in cost. But on average the cost of a shared room in a 6 bed or smaller facility is $2500 per month and for a single room is it $3500 per month. Again, keep in mind that these facilities do not accept insurance payments.

Another type of residential care facility is the large Assisted living facility which provides assistance with Activities of Daily Living (ADLs), but allows one to live as independently as possible for as long as possible. Assisted living exists to bridge the gap between independent living and nursing homes. Residents in assisted living centers are not able to live by themselves, but do not require constant care or 24hr nursing care either. Assisted living facilities offer help with ADLs such as eating, bathing, dressing, laundry, housekeeping, and assistance with medications. Assisted living is not an alternative to a nursing home, but an intermediate level of long-term care appropriate for many seniors. Many of the facilities also have special memory care units for those with Alzheimer and Dementia that are not at the advanced stages which require more medical care. The cost per month for this type of facility ranges from about $3,000 to $5,000. The level of care needed is what affects the cost. You just basic room and board it is in the $3000 range. If the resident needs assistance with meals or dressing for example, the cost will be higher because a higher level of care is provided. Another factor in cost is if the resident lives in a shared room or a private room. Again, these facilities are private pay only. Meaning they do not accept insurance payments of any kind.

The final type of facility is the Long Term Care also known as a Nursing Home. In these facilities they provided total care. Meaning they provide assistance at all levels. There is not just supervision 24hrs per day, there is actual medical care provided 24 hrs per day. Assistive devices such as wheelchairs and walkers are welcome. The main difference is that nursing care such as wound care, IVs, injectable medications, and mechanic feedings are allowed. Resident that require outside care such a hemodialysis can still attend their treatments and then have 24 hr nursing service to monitor them. The care provided is much more extensive in Long Term Care. The cost is much greater, but insurances are accepted and Medi-cal does pay for services at this level. The average cost is about $5200 for shared room to $7000 for a private room. The charges are for the total care of the patient including their medications and the visits with the facility physician. If the resident is a private pay patient then the fees may vary as the medications would not be included in their care unless the resident has Medicare part D.

Our elderly population deserves  treated with respect and dignity.

Published by Denise Rogers

I am a wife, mother, stepmother and grandmother who enjoys spending time with family and friends, crafting, gardening, and I am learning to live with being disabled. In 2017, after my 8th thoracic spinal surgery, I lost all feeling from the waist down as well as losing my proprioception on the right side. This has made it difficult to stand without assistive devices and made it, so I am having to relearn to walk. Plus, I have another uncommon condition called Chiari Malformation Type 1 which also creates balance issues as well as many other health issues. Because of the Chiari and the spinal cord injury, I have been left with severe nerve damage which causes a great deal of pain (5 and greater on pain scale) as well as spasticity, muscle spasms, and allodynia (burning) in various areas of my body. I have endured 8 surgeries on my Thoracic Spine and will probably need more as the drain that was placed will eventually clog and require replacement. Currently, I have a spinal to pleural cavity shunt, which drains the CSF from my arachnoid cysts into my pleural cavity. Professionally, I am a retired Health Care Professional with over 26 years of experience. I have worked in the Public Health realm as well as in Long Term Care and Acute Care. I have a B.A. in Sociology with an emphasis in Social Work. It is my hope that through sharing my personal trials, experiences, and triumphs that I can help others keep moving forward. No matter what life throws at us we can always tell a better story. I know that God is with me and because of this anything is possible. His promise to be by my side every step of the way helps me to keep pushing on even when there are setbacks.

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