Caring for A.J.

Andrew Joseph Bay age 2 1/2 was recently diagnosed with Acute Lymphoblastic Leukemia (ALL).   He is currently undergoing aggressive therapy. He receives chemo every week and is taking four medications daily and five on the weekends. His treatment will continue over the next three years.

Each day is so hard on him. He cannot go out an play like other kids as he has no immune system because of the treatment. He also has very little stamina. He sleeps a lot and does not have a huge appetite. Although popcorn and slurpees are his favorite.

A website has been set up to help the family as the medical care costs are beyond what the family can handle.  The family really needs financial support as their ability to work is diminished because A.J. has continual have medical appointments as well as has to be watched closely 24 hrs a day. Also, the costs of the medications is above what the insurance company will cover. Please if you can donate any amount to help him and his family through this difficult time it would be greatly appreciated.

https://fundrazr.com/campaigns/2a3E4  Getting ready to eat his popcorn AJ and daddy

Published by Denise Rogers

I am a wife, mother, stepmother and grandmother who enjoys spending time with family and friends, crafting, gardening, and I am learning to live with being disabled. In 2017, after my 8th thoracic spinal surgery, I lost all feeling from the waist down as well as losing my proprioception on the right side. This has made it difficult to stand without assistive devices and made it, so I am having to relearn to walk. Plus, I have another uncommon condition called Chiari Malformation Type 1 which also creates balance issues as well as many other health issues. Because of the Chiari and the spinal cord injury, I have been left with severe nerve damage which causes a great deal of pain (5 and greater on pain scale) as well as spasticity, muscle spasms, and allodynia (burning) in various areas of my body. I have endured 8 surgeries on my Thoracic Spine and will probably need more as the drain that was placed will eventually clog and require replacement. Currently, I have a spinal to pleural cavity shunt, which drains the CSF from my arachnoid cysts into my pleural cavity. Professionally, I am a retired Health Care Professional with over 26 years of experience. I have worked in the Public Health realm as well as in Long Term Care and Acute Care. I have a B.A. in Sociology with an emphasis in Social Work. It is my hope that through sharing my personal trials, experiences, and triumphs that I can help others keep moving forward. No matter what life throws at us we can always tell a better story. I know that God is with me and because of this anything is possible. His promise to be by my side every step of the way helps me to keep pushing on even when there are setbacks.

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