Aj’s journey fighting Leukemia with prayer

On August 13th 2014 it will be one year that AJ was diagnosed with ALL Leukemia. It has been a journey of ups and downs. More ups than downs. He is a vibrant child with so much love and happiness to share. We are all learning from him. Prayer still continues to be at the center our journey. God has chosen to use him to teach us all.

During this first year AJ and I am sure many other children with cancer have as well has gone through repeated testing. It is hard to just watch. Praying is the only way to actively be involved sometimes. Watching a three old come out of anesthesia for the umpteenth time is hard for everyone. He wakes up wanting mommy and daddy, then starts screaming because he cannot really understand what is happening. Having repeated LPs(Lumbar punctures) every three months to check his counts to see if the chemo is working is not what any child should have to go through.

AJ tends to get agitated for days after the procedure. He get angry and throws things for no reason. He screams and cries for no apparent reason even when in public. Then the doctors add in the steroid treatment. The meds change him. He is normally a cuddly and affectionate little boy with lots of smiles. During this period of treatment he becomes unruly and angry. His parents as well as others around him have had to learn patience and to deal with society views of him. People in public places often react negatively. They believe he is just being a brat. See they don’t understand that he has leukemia or that he is taking medication that changes his behavior. Even when he is wearing a mask people assume he just has a cold. But, through prayer God had given us the ability to help others understand more about his illness and what it means. We have all had to learn to be more tolerant and do things with love and not out of love.

Through the power of prayer God heals the fear. HE gives comfort and teaches us that we are in His hands. He is there to hold AJ and sooth him as well as to hold us. His mommy and daddy gain God’s reassurance that their little boy is healing and going to be okay through the doctors. God connects us all in ways we have no idea how they happen or why they happen. HE gave AJ the right doctor at the right time and the cancer was caught early. Each time AJ’s counts have fallen, God has answered the prayers of the many. There is no doubt that there is true power in prayer.

May others be blessed and encouraged to seek God and pray. For God, loves us and wants us to seek Him and rely on Him. He does not care if you haven’t followed Him in the past. He is waiting with open arms to welcome you back in to His family. 004

Published by Denise Rogers

I am a wife, mother, stepmother and grandmother who enjoys spending time with family and friends, crafting, gardening, and I am learning to live with being disabled. In 2017, after my 8th thoracic spinal surgery, I lost all feeling from the waist down as well as losing my proprioception on the right side. This has made it difficult to stand without assistive devices and made it, so I am having to relearn to walk. Plus, I have another uncommon condition called Chiari Malformation Type 1 which also creates balance issues as well as many other health issues. Because of the Chiari and the spinal cord injury, I have been left with severe nerve damage which causes a great deal of pain (5 and greater on pain scale) as well as spasticity, muscle spasms, and allodynia (burning) in various areas of my body. I have endured 8 surgeries on my Thoracic Spine and will probably need more as the drain that was placed will eventually clog and require replacement. Currently, I have a spinal to pleural cavity shunt, which drains the CSF from my arachnoid cysts into my pleural cavity. Professionally, I am a retired Health Care Professional with over 26 years of experience. I have worked in the Public Health realm as well as in Long Term Care and Acute Care. I have a B.A. in Sociology with an emphasis in Social Work. It is my hope that through sharing my personal trials, experiences, and triumphs that I can help others keep moving forward. No matter what life throws at us we can always tell a better story. I know that God is with me and because of this anything is possible. His promise to be by my side every step of the way helps me to keep pushing on even when there are setbacks.

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