Archive | July 2017

Waiting game

Time has passed and I am still living in pain. Recently I had returned to see my Neurosurgeon for follow-up on my 5th surgery and the symptoms indicated there was a major problem. After getting an MRI it was confirmed. There was a large Arachnoid cyst at T4-7 compressing my spinal cord. There was only one possibility, yet another surgery. Arrangements were made and I was admitted to the hospital.

The surgeon explained the procedure as normal, but also added that he may leave the existing tubing in place instead of replacing it. What this means for me is that I will have two different drainage devices instead one working one. The anxiety caused by knowing that so have two things that could fail is enormous. Yet, I have been feeling rather calm. God has blessed me through this. There are so many times I am overwhelmed and then I instantly feel calm.

Apparently, my surgery took longer than expected as my surgeon performed a Duraplasty . A procedure that is not done in the thoracic spine, but in the head and cervical spine. The Dura is the outer covering of the brain and spinal cord. So in this procedure the Dura is cut open and a patch is sewn in to give more room for the spinal cord. The surgeon opted to try this as he said that amount of scar tissue I had developed was incredible. He believes that this should give more space for my spinal cord and reducing the amount of new scar tissue.

Prior to surgery I was able to walk and care myself with minimal help. I had some proprioception deficit in my left leg and total feeling in my right leg. Now I am completely numb on the right side and have proprioception issues in both legs. This means starting over with intensive Acute rehab. and then eventually to outpatient therapy.

It is painful both physically and emotionally. I have to stay at the facility where I am away from my family, friends, and dog . I can have visitors which helps, but they can only stay for a short time. This leaves me alone most of the time. But I am never really alone, as I have God. I talk to Him all the time asking Him to guide me, give me strength and continue to heal me. He is awesome! The power of prayer is real! Thank you Lord for all of you love and sacrifice. Amen!

Waiting again

Another day with pain and waiting for yet another MRI and still have tons of spams with lots of spasticity and pain. I spend more time in hospitals and doctors offices these days. If it is not imagining, then it physical  therapy or pain doctors. Long days filled with little good news.

Today was no different. Back to surgery I go. This will make the 5th surgery in the last 7 months. Per the MRI I have a large cyst that is compressing my spinal cord. This explains why I have increased weakness in my right leg causing me to be more off balance. Plus there is the increase in spams which equates to more pain. 

It is really hard to stay positive and to be thankful. I know that God is there and he loves me, so when is this going to stop?  When is God going to help me / heal me? Maybe never in this lifetime but for now all I can do is pray and have faith. Be blessed!