Waiting again

Another day with pain and waiting for yet another MRI and still have tons of spams with lots of spasticity and pain. I spend more time in hospitals and doctors offices these days. If it is not imagining, then it physical  therapy or pain doctors. Long days filled with little good news.

Today was no different. Back to surgery I go. This will make the 5th surgery in the last 7 months. Per the MRI I have a large cyst that is compressing my spinal cord. This explains why I have increased weakness in my right leg causing me to be more off balance. Plus there is the increase in spams which equates to more pain. 

It is really hard to stay positive and to be thankful. I know that God is there and he loves me, so when is this going to stop?  When is God going to help me / heal me? Maybe never in this lifetime but for now all I can do is pray and have faith. Be blessed! 

Published by Denise Rogers

I am a wife, mother, stepmother and grandmother who enjoys spending time with family and friends, crafting, gardening, and I am learning to live with being disabled. In 2017, after my 8th thoracic spinal surgery, I lost all feeling from the waist down as well as losing my proprioception on the right side. This has made it difficult to stand without assistive devices and made it, so I am having to relearn to walk. Plus, I have another uncommon condition called Chiari Malformation Type 1 which also creates balance issues as well as many other health issues. Because of the Chiari and the spinal cord injury, I have been left with severe nerve damage which causes a great deal of pain (5 and greater on pain scale) as well as spasticity, muscle spasms, and allodynia (burning) in various areas of my body. I have endured 8 surgeries on my Thoracic Spine and will probably need more as the drain that was placed will eventually clog and require replacement. Currently, I have a spinal to pleural cavity shunt, which drains the CSF from my arachnoid cysts into my pleural cavity. Professionally, I am a retired Health Care Professional with over 26 years of experience. I have worked in the Public Health realm as well as in Long Term Care and Acute Care. I have a B.A. in Sociology with an emphasis in Social Work. It is my hope that through sharing my personal trials, experiences, and triumphs that I can help others keep moving forward. No matter what life throws at us we can always tell a better story. I know that God is with me and because of this anything is possible. His promise to be by my side every step of the way helps me to keep pushing on even when there are setbacks.

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