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Every day can bring something different. Sometimes days start with low pain only to have it increase throughout the day. Living with chronic pain is draining not only for the body but for our mind.
Because you never know when pain is going to go from 3 to 7+ you worry about where you are going or who is going to be around. Are you going to be in public? Are you close to home? Is the a place where you can attempt to get some relief?
When living with chronic pain there are so many things to consider. Yes, medications do help some, but they never relieve the pain fully leaving us to find ways to cope.
Yoga and other forms of exercise can be beneficial. Learning to breathe and stretch can help during spasms allowing some relief. Everyone is different and we must all find what works for us.
Our struggle and pain is real even if we don’t look ill. Most people living with chronic pain do there best not to show it and to stay positive. But when we have high pain days and can not do much don’t call us lazy or think we are faking it . Instead show compassion and understanding. Pray for us in those moments and let God’s healing hands do the rest.
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Published by Denise Rogers
I am a wife, mother, stepmother and grandmother who enjoys spending time with family and friends, crafting, gardening, and I am learning to live with being disabled. In 2017, after my 8th thoracic spinal surgery, I lost all feeling from the waist down as well as losing my proprioception on the right side. This has made it difficult to stand without assistive devices and made it, so I am having to relearn to walk. Plus, I have another uncommon condition called Chiari Malformation Type 1 which also creates balance issues as well as many other health issues.
Because of the Chiari and the spinal cord injury, I have been left with severe nerve damage which causes a great deal of pain (5 and greater on pain scale) as well as spasticity, muscle spasms, and allodynia (burning) in various areas of my body. I have endured 8 surgeries on my Thoracic Spine and will probably need more as the drain that was placed will eventually clog and require replacement. Currently, I have a spinal to pleural cavity shunt, which drains the CSF from my arachnoid cysts into my pleural cavity.
Professionally, I am a retired Health Care Professional with over 26 years of experience. I have worked in the Public Health realm as well as in Long Term Care and Acute Care. I have a B.A. in Sociology with an emphasis in Social Work.
It is my hope that through sharing my personal trials, experiences, and triumphs that I can help others keep moving forward. No matter what life throws at us we can always tell a better story. I know that God is with me and because of this anything is possible. His promise to be by my side every step of the way helps me to keep pushing on even when there are setbacks.
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