Keep Going

Have you ever wondered “What if…”? For me it is what if my legs quit working, my cyst(s) to pleural shunt fails, my Chiari Malformation worsens, what if I develop more cysts and so many more questions. But focusing on the “what ifs” cause us to focus on all the negatives. Sure, they may happen, but mostly they don’t. Meanwhile, we have wasted precious time and energy surviving instead of moving forward and thriving as we were intended to do.

It is not always easy to stay positive amid dealing with life. Everyone has a story that is running through their head. We all have things about ourselves that we are not happy with and want to change. Do you want to lose weight? Get more restful sleep? Or ask your boss for a raise? For me, it continues to be
regaining my balance and proprioception, lowering my pain without the use of opioid medications, and being able to take care of and enjoying my family. When my life changed almost five years ago because of an Incomplete Spinal Cord injury, Chiari Malformation and Allodynia everything seemed hopeless for a
time. But daily I am reminded that although tragedy happens there are many positives all around us. So, take time and really look at the people and beauty which surrounds you.

Yes, the power of positive thinking is a good habit to get into, but that alone will not bring your goals to fruition. We must show up, be persistent, and remember that God is with us. Also, remember even baby steps count. Each day is an opportunity to “keep moving forward” and to seek out the positives in our lives regardless of how small and Thrive.

Published by Denise Rogers

I am a wife, mother, stepmother and grandmother who enjoys spending time with family and friends, crafting, gardening, and I am learning to live with being disabled. In 2017, after my 8th thoracic spinal surgery, I lost all feeling from the waist down as well as losing my proprioception on the right side. This has made it difficult to stand without assistive devices and made it, so I am having to relearn to walk. Plus, I have another uncommon condition called Chiari Malformation Type 1 which also creates balance issues as well as many other health issues. Because of the Chiari and the spinal cord injury, I have been left with severe nerve damage which causes a great deal of pain (5 and greater on pain scale) as well as spasticity, muscle spasms, and allodynia (burning) in various areas of my body. I have endured 8 surgeries on my Thoracic Spine and will probably need more as the drain that was placed will eventually clog and require replacement. Currently, I have a spinal to pleural cavity shunt, which drains the CSF from my arachnoid cysts into my pleural cavity. Professionally, I am a retired Health Care Professional with over 26 years of experience. I have worked in the Public Health realm as well as in Long Term Care and Acute Care. I have a B.A. in Sociology with an emphasis in Social Work. It is my hope that through sharing my personal trials, experiences, and triumphs that I can help others keep moving forward. No matter what life throws at us we can always tell a better story. I know that God is with me and because of this anything is possible. His promise to be by my side every step of the way helps me to keep pushing on even when there are setbacks.

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