Every day can bring something different. Sometimes days start with low pain only to have it increase throughout the day. Living with chronic pain is draining not only for the body but for our mind.
Because you never know when pain is going to go from 3 to 7+ you worry about where you are going or who is going to be around. Are you going to be in public? Are you close to home? Is the a place where you can attempt to get some relief?
When living with chronic pain there are so many things to consider. Yes, medications do help some, but they never relieve the pain fully leaving us to find ways to cope.
Yoga and other forms of exercise can be beneficial. Learning to breathe and stretch can help during spasms allowing some relief. Everyone is different and we must all find what works for us.
Our struggle and pain is real even if we don’t look ill. Most people living with chronic pain do there best not to show it and to stay positive. But when we have high pain days and can not do much don’t call us lazy or think we are faking it . Instead show compassion and understanding. Pray for us in those moments and let God’s healing hands do the rest.
Yoga continues to be a must for continued progress in regaining more stability. Because without proprioception and balance just standing is difficult. Each day continues to bring challenges whether it is high pain, increased spasticity, or both. Yoga helps with reducing spasticity through stretching while reducing pain through breathing and relaxation. There are times on high pain days where all I can do is rest, but whenever possible taking time to do at least 30m mins. of yoga seems to help me to continue to progress.
When I first started I could barely lift my leg/legs and had to hold on with both hands. My body is gradually regaining more balance and proprioception allowing me to tell where my leg/legs are in space. This is crucial for walking.
Being able to balance and lift my leg behind while holding for 3 full breaths is such an improvement. I can feel my leg and ankle adjusting while I hold the position. This is also being done without engaging the breaks on my walker making use my core.
As you can see, I can elevate one leg high than the other. Because of the loss of proprioception and balance on the left side of my body it is much more difficult to engage fully.
Yoga continues to be a must for continued progress in regaining more stability. Because without proprioception and balance just standing is difficult. Each day continues to bring challenges whether it is high pain, increased spasticity, or both. Yoga helps with reducing spasticity through stretching while reducing pain through breathing and relaxation. There are times on high pain days where all I can do is rest, but whenever possible taking time to do at least 30m mins. of yoga seems to help me to continue to progress. I am so thankful for all God has brought me through over the past few years. All glory belongs to Him!
I learned something new and beautiful today and I want to to share it with others. Please take 8 mins and watch the video below. It brings musical knowledge as well as spiritual growth. What a truly amazing God we serve.
Having the ability to cook without worrying about falling has helped me feel more confident. Using my LifeGlider has given me the use of my hands while having better balance. I have always enjoyed cooking for my family, but when I lost proprioception and balance it was almost impossible to stand and cook using a regular walker because I had to constantly had look a my legs/feet so that my brain could register where my legs were at all times otherwise any slight weight shift would send me falling. So blessed to have found a great device that allows me to stand up straight, walk more correctly all the while being safe.
During the times when the news is negative, and people fail to treat each other with love and respect we can still live with joy and smile. Often my days are long, and my nights are short and restless because my pain is all over the place thanks to living with an Incomplete Spinal Cord Injury and Chiari Malformation, but I still have joy and can smile because God has promised that I will be healed and will succeed. He gives me each day to enjoy all the little moments even through the pain.
I pray of ten for total healing. A healing that will take the muscle spasms away, the leg electrical zaps, the pain of 6+ that I fight several times a day that include allodynia on most of my torso. and one that will give me the total use of my legs. Although that t day has not come yet I know it will. But God has performed many great things in my life. He has taken me out of a wheelchair and given me the ability to stand and walk with a walker and at times without one. He has allowed me to continue to use my hands which allow me to paint, draw, take photos, but most of to hug all those around me so that I may spread the joy and love.
No matter what life throws at us there is always something to be thankful for. Even when life feels like we are walking through the mud with extra weight on our backs we can still smile and have joy because the little things matter. The smiles we share, the hugs we give to our family, the elbow bumps we share with our friends and/or co-workers. If we focus on the good the and keep moving forward, we will soon find ourselves on the other side of all the bad. So, smile even when you don’t believe you can and start telling a better story. His promise is real.