Having the ability to cook without worrying about falling has helped me feel more confident. Using my LifeGlider has given me the use of my hands while having better balance. I have always enjoyed cooking for my family, but when I lost proprioception and balance it was almost impossible to stand and cook using a regular walker because I had to constantly had look a my legs/feet so that my brain could register where my legs were at all times otherwise any slight weight shift would send me falling. So blessed to have found a great device that allows me to stand up straight, walk more correctly all the while being safe.
Taking time to relax and rest. After a week of being sick as well as dealing with the daily issue my hubby and I are enjoying visiting our family and relaxing in New Port Beach,Ca. This will be our view for the weekend. Hoping this will bring more healing into my body. Enjoying some of the wonders God has given us!
Enjoying the outdoors and cooler weather in Big Bear. Taking time to seize the moment when my pain in on the low end for me (about a 4) and watching to make sure I do not over heat and cause my symptoms to flare.
Not being able to regulate my body temperature has made getting out more difficult. Because I only sweat on my face and neck my body cannot cool itself which poses the risk of over heating and heat exhaustion, so staying cool and drinking plenty of water are a must. Then there is the opposite issue as well. My body cannot tolerate over air conditioned places. Both extremes cause my body to spam and burn more, which of course, causes my pain to increase. Oh, the joys of living with a spinal cord I jury.
The best thing I can do for myself is to take the opportunities that present themselves and keep moving forward. At the same time, learning to allow myself down time when my body is in pain without beating myself up. I still have work to do in this area.
As each day passes the pain comes and goes. Some days I feel like a run and play all day. Yet on others days I can barely get out of bed and I have to push myself to function. It is scary to not to know what will happen next.
A few months ago I faced a new discovery that my spinal cord was being compressed in three areas in my cervical spine. This was discovered after suffering from headaches every day for about 6 mos. as well as diminished function in both arms and hands as well as a visual disturbances. Often I could not even pick up a pen without pain or inability to grab things. My arms often tingled and felt heavy. My vision fluctuated so much that on some days I could not even see my computer or read a book.
I was already taking Gabapentin for the spasticity in my legs. So this was increased to see if it would help. As for my headaches, everything was tried to stop them. I even endured weekly injections of Lidocaine into the back of my head at the base of the skull on each side. The headaches were relieved for a few days at a time, but always came back. I was placed on combination of Amitriptyline and Zanaflex to see if it helped with the pain and muscle spasms. The medications made me so sleepy that I could not function for the first week. After the first week I was able to function a bit better and some of the pain subsided. Losing some of the symptoms was a relief.
The neurologist finally suggested an MRI because the symptoms were getting worse even with the medication. About a week after the MRI I was called and asked to come in. I was told that they had found that my spinal cord was compressed in three areas in my cervical spine. I was referred to a Neurosurgeon.
On my first visit to the neurosurgeon it was suggested that I needed surgery. By this time I was willing to try anything and agreed to have the surgery. It was explained that I would have an incision made to the front of my neck (about 2 inches long), and that three disks would be removed and replaced with cadaver bone grafts. Then the doctor would insert a metal plate with screws and fuse my vertebrae from C3 to C 6. I would have to wear a hard cervical collar and not be able to drive for six weeks. This all sounded scary, but I knew this was the only way I might get relief.
Having the surgery was a great decision. I only stayed in the hospital one night. I was able to get up and move the same day of the surgery. The pain was minimal. I followed what the doctor said exactly and wore the collar and did not drive for six weeks. I noticed immediately that the headaches were gone. After about the first week the pain in my arms was gone. Slowly the strength that I lost in my hands and arms returned. I was told there was a possibility of limitations of mobility in my neck. I am glad to say that I have none. I am so blessed.
It has now been 4 months and I have had no headaches, my vision has finally stabilized, and I can use my arms and hands without limitations. I now have a small scare on the front of my neck, but that is a small price to pay for what I have gained. I am still facing further surgery to correct the Arachnoid Cysts I have in my Thoracic Spine. God had truly blessed me with a great Neurosurgeon and family who are in this with me.