Standing doing my hair without any assistive devices! My balance has improved thanks to doing yoga with an instructor 2x per week (5 weeks so far) and using my LifeGlider.
I did have a recent fall🤪. I was bending down to pick something up off the floor, I had undone the safety belt on my walker as it was restricting me,there was water on the floor and my legs slipped causing me to loose my footing and down I went. Not smart on my part. Just because my balance and proprioception have improved some does not mean I don’t have to continue to pay attention to what I am doing. I still have to remind myself of walking hill to toe, to pick up my feet, and not to lean forward. Old habits are hard to break!
I am still excited about all the progress I am making. I know I am not doing this alone. Thank you everyone for your continued prayers and your words of encouragement. I know God is with me and because of this anything is possible. His promise to be my side every step of the way helps to keep me moving forward even when there are set backs.
Taking time to relax and rest. After a week of being sick as well as dealing with the daily issue my hubby and I are enjoying visiting our family and relaxing in New Port Beach,Ca. This will be our view for the weekend. Hoping this will bring more healing into my body. Enjoying some of the wonders God has given us!
Enjoying the outdoors and cooler weather in Big Bear. Taking time to seize the moment when my pain in on the low end for me (about a 4) and watching to make sure I do not over heat and cause my symptoms to flare.
Not being able to regulate my body temperature has made getting out more difficult. Because I only sweat on my face and neck my body cannot cool itself which poses the risk of over heating and heat exhaustion, so staying cool and drinking plenty of water are a must. Then there is the opposite issue as well. My body cannot tolerate over air conditioned places. Both extremes cause my body to spam and burn more, which of course, causes my pain to increase. Oh, the joys of living with a spinal cord I jury.
The best thing I can do for myself is to take the opportunities that present themselves and keep moving forward. At the same time, learning to allow myself down time when my body is in pain without beating myself up. I still have work to do in this area.
spinal cord injury (SCI) happens when there is damage to cells in the spinal
cord. It causes a loss of communication between the brain and the parts of the
body below the injury. Some effects of a SCI may include low blood pressure,
inability to regulate blood pressure effectively, reduced control of body
temperature, inability to sweat below the level of injury, and severe chronic pain.
Our spine starts at the Cervical spine is from C1-C8, then the Thoracic Spine
is from T1-T12, the Lumbar spine is from L1-L5 and the Sacral spine is from
The spinal cord is the
bundle of nerves that transmits nerve impulses from the brain to the rest of
the body and vice versa. It is 17 inches (43 cm) long in women and in men it is 18 inches
(45 cm) long.
It is a fragile cylindrical structure of nervous tissue that extends from the
base of the brain stem (C1) to the sacrum (S5). It contains motor and sensory
nerve fibers that sends and receives nerve signals to and from all parts of the
body. The sensory nerves control involuntary functions of the body such as
breathing and our heartbeat. An injury to the spinal cord disrupts the normal signals
rendering the patient incapacitated starting at the first vertebrae below the
area of the damage.
The most common causes for spinal cord injury are:
Sports and exercise
Violence such as gunshot wound
Alcohol related accidents
Infections and disease
There are two types of spinal cord injuries: complete and
incomplete. A complete spinal cord injury would result in permanent damage to
the spinal cord. A patient with complete damage has no control of his body
movement and may be bedridden. An incomplete spinal cord injury is partial
damage to the spinal cord where the spinal cord retains some ability to convey
messages to or from the brain allowing the patient some sensory activities
below the site of the injury.
Often spinal cord injury results in a loss of function, such as the ability to walk, loss of control of the bladder, bowel or both. Patients often have trouble walking, have numbness, loss of sensation, have difficulty regulating body temperature, and live with chronic pain.
Each day is different. Some days are great in that the pain is down usually around a 3 to 5 on the pain scale. Other days no matter what I do the pain remains high at about 5 to 9. There is no reason for it as my medications remain the same. Why? This is the one of the questions that plague me. I am learning to deal with so many things, but the one big thing is letting go of the why and learning to live in the now. This is beyond difficult.
Some days it feels like God is gone and has left me. He hates me. He not only took the use of my legs, but has allowed me to continue to hurt at levels that are unbearable at times. I have become isolated from those around me as their lives cannot accommodate someone like me who is slow moving and unreliable because the pain. My only communication with “friends” is often via things like Facebook or Instagram. It is a lonely place to be. The reality is people don’t just want to sit around watching TV, playing a game or talking with someone who is hurting because we are not fun to be around. Besides their lives don’t have time for people like us who are in constant pain and disabled.
Learning to let all of that go and see the “bright side” is not easy. Realizing that God is still there and He really does love us seems like a dream. For me, deep down I know that God is real and He loves me. The enemy loves to sneak in and make me doubt everything. So often questions like, can my family still love me the same? How can I still be whole? How can I take care of my family as I can barely take care of myself? Each day seems to bring new questions and doubt. It sucks. It doesn’t help when the people you love are constantly telling you things like- Pick up you feet, bend your knees, don’t bend over and pick things up. As for me, I already know my body doesn’t work right I really don’t need to be reminded constantly.
So how do I let is all go? I don’t know at this point. Each day all I can do is pray constantly and do my best to move forward. With God’s help it is my hope that I will find a purpose for my life and I can learn to let all of this go accepting what is happening to me.