The gorgeous sunset tonight. Enjoying the view while navigating the pain and spams. Have enjoyed the day watching my grandkids and nephew hang out and boogie board. So thankful for the special moments when my pain is down. Ugh!!!!Spams and burning. Man it sucks! The pain often interrupts my life in so many ways. Doing my best to enjoy as many moments as possible. God has painted the sky yet again!
Taking time to relax and rest. After a week of being sick as well as dealing with the daily issue my hubby and I are enjoying visiting our family and relaxing in New Port Beach,Ca. This will be our view for the weekend. Hoping this will bring more healing into my body. Enjoying some of the wonders God has given us!
Made it to the gym! When I awoke on Thursday I wasn’t sure I would make it. I had a rough night on Wednesday because of pain. My left side spasmed and burned at an 7 to 8, off and on most of the night despite taking my extra medication. When I awoke on Thursday I immediately laid back down because I was dizzy and I got nauseated. After about 30 mins. I was able to get up. I got myself ready and headed to the gym. I still was not feeling 100%, but I knew not working out would slow my progress down.
I started off by warming up on the treadmill for 12 mins. I realize that this is not very long, but for me it is a workout especially with it inclined at 5.0. For safety, my trainer stands by me the entire time. We then worked our way over to the TRX (Total Resistance Exercise) area. I do 4 sets of 12 to 15 reps of squats (sit to stands). This exercise is still very difficult for me. I have to be very cautious as doing any exercise that engages my back has the potential to set off my spasming which then leads to the burning (Allodynia). As you can see below that working on the TRX takes energy and a lot of concentration. My right leg wants to turn in instead of out when I squat/sit.
I then moved on to working on some coordination exercises which engage my brain and muscles. The only way to build new pathways is through repetition and concentrating on what I feel and don’t feel.
Simple leg lift-not so simple for me. Hard to control my legs.
take a lot of
I will keep working on building new pathways and helping my body heal. I am continuing to crawl daily and practice getting up and down off the floor. I really miss things like dancing and running, but I know that with hard work I can get there some day. God continues to heal me and get me through. Without God and my wonderful family none of this would be possible.
Beating my incomplete SCI T2-9, C4-C6 and Chiari is feeling thankful.
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On Thursday June 13, 2019, I went to the pain clinic for another nerve block. Hoping this one actually works. In the past there has not been much success, but when you live with as much pain as I do you are will to try.
Usually, after this type of treatment I am down for a day or two but so far so good. Today the pain has been better ( usually runs about a 5-7, and today it has stayed about a 4-5). Hopeful that this time I get some much needed relief from the spasms and burn feeling that runs down the entire left side of my torso.
The procedure itself is painful but nothing like my daily pain so I am willing to endure it. The doctor first wipes down the area, then he numbs the area/areas to be injected. The 5 injections of lidocaine are not pleasant but tolerable. Next using a fluoroscope the doctor find the nerve to be injected, mine were at T6, T7, T8 and T-9. He finds the nerve by inserting the needle in slowly until it hits the rib bone then slides it ever so slightly into the nerve and then injects the medication which is suppose to deaden the nerve keeping it from sending the signals to the affected area. It usually takes at least 24 to 48 hours to start feeling the effects.
When I woke the morning after the procedure I was still feeling a lot of burning and spasming in the areas of injection. After I got up and moved around a bit the pain has diminished to about 4 overall on the pain scale. This is huge for me. I am was hopeful that maybe the injections worked.
Now at almost a week since the procedure, I do have to report that my pain, especially at night around the 8:00 pm time, seems to increase to about an 8. Even with taking extra meds such a Tizanidine, which has been prescribed, the spasms and pain remain high. I would say that the nerve block did not help. Back to the drawing board.
Overall, I am very thankful for yet another day to be with my family and friends. God has given me so much. I don’t want to waste it.