The gorgeous sunset tonight. Enjoying the view while navigating the pain and spams. Have enjoyed the day watching my grandkids and nephew hang out and boogie board. So thankful for the special moments when my pain is down. Ugh!!!!Spams and burning. Man it sucks! The pain often interrupts my life in so many ways. Doing my best to enjoy as many moments as possible. God has painted the sky yet again!
Taking time to relax and rest. After a week of being sick as well as dealing with the daily issue my hubby and I are enjoying visiting our family and relaxing in New Port Beach,Ca. This will be our view for the weekend. Hoping this will bring more healing into my body. Enjoying some of the wonders God has given us!
Enjoying the outdoors and cooler weather in Big Bear. Taking time to seize the moment when my pain in on the low end for me (about a 4) and watching to make sure I do not over heat and cause my symptoms to flare.
Not being able to regulate my body temperature has made getting out more difficult. Because I only sweat on my face and neck my body cannot cool itself which poses the risk of over heating and heat exhaustion, so staying cool and drinking plenty of water are a must. Then there is the opposite issue as well. My body cannot tolerate over air conditioned places. Both extremes cause my body to spam and burn more, which of course, causes my pain to increase. Oh, the joys of living with a spinal cord I jury.
The best thing I can do for myself is to take the opportunities that present themselves and keep moving forward. At the same time, learning to allow myself down time when my body is in pain without beating myself up. I still have work to do in this area.
As I go through this journey, I have to remind myself of where I have come from. Two years ago I was in a hospital recovering from 4th surgery in less than a month. I could not feel much below the waist and I could barely take 20 steps without being totally exhausted. My pain was much higher, and I had to take higher doses of medications on a daily basis. Through a lot of physical therapy and working out on my own I am making progress.
As you can see in the videos, I still have difficulty and need assistance to complete some of the exercises. But does that really matter? No, the important part is that I am at the gym and I am doing things I never thought possible. Our bodies are amazing, and I truly believe that as I exercise, I am helping to create new neural pathways
My Rt ankle and leg/glute continue to give me difficulties. Even with my foot strapped in my foot wants to drop forward. My knee also wants to turn in.
My left leg/glute is stronger, but still requires my foot to be strapped in.
My knees continue to have the problem of hyperextending. This is why I do not straighten my legs completely.
Exercises that require me to know where my leg are when I am not looking at them (proprioception) are super challenging and often require my trainer to assist me. Although this true, there have been vast improvements like; I can walk behind my walker or a shopping cart without having to look at my feet continually, I can stand and give someone a hug without falling over, I can stand and cook a meal without having to stop and look at my feet every 10 to 15 secs., and I am beginning to be able to take a few steps without using any devices. Pain or no pain, I am grateful for every day I am given. I have been blessed with an amazing family who stand by me each and very day. It is my duty to Keep Moving Fortward!.
Every week for the past 5 months on Tuesdays and Thursdays I head to my local gym to workout with my wonderful trainer. The decision to return to the gym was not an easy one. I wasn’t sure I would be able to do much of anything, but I knew I needed to do something to kick start my recovery. Although my journey started in 2001, I did not loose the use on my legs until June of 2017 when I stood after the 5th surgery. Upon standing with a walker I went to take a step and I began to fall. My husband and the CNA grabbed me to keep me from falling. They placed back into bed and all I kept saying was,” I cannot feel my legs.” I lost complete feeling on my right side from the waist down, my left leg had some feeling (when I stood it felt like I had a sponge under my foot), and I lost my proprioception. Proprioception is the ability to tell where your body or body parts are in space.
For the 1st year after the surgery I worked with a physical therapist 3 times per week. When I left therapy I was still very weak and was still unsteady and had very little balance and proprioception. My knees would hyper extend, my ankles would twist outward, and my feet would drag. I wore corrective devices such as braces to knee my knee from hyperextending and ankle braces that prevent me from rotating my ankle. I still wear the ankle braces.
Well, I thought I would share some of the progress I have made since starting at the gym 5 months ago. I am still not able to ride the stationary bike as my ankles and legs cannot seem to move forward, but I am able to use the treadmill , even on an incline. I also work on strengthening my legs and core. I still cannot do much upper body as it sets the spasms in my back off.
Each day I have to strive to keep moving forward. I have good days and some really unpleasant ones. There are days that no matter what I do I cannot seem to get the spasms and burning to stop. My legs feel so heavy and I feel like I am walking through thick mud. I do my best to not get discouraged. My families love and support along with lots of prayer are what get me through. God is doing amazing things and even on some of my worst days I am thankful because I get another day with all of those that I love.